A family whose son was refused a cannabis-based treatment on the NHS for his epilepsy have been thrown a lifeline by a generous company.
But the medicine costs £1,400 a month which his family have been fundraising to pay for – despite the medicine being available on the NHS for the past two years.
Murray was diagnosed with Doose syndrome, a severe form of epilepsy, in 2017 and had up to 12 seizures a day.
After he ended up in a vegetative state in hospital, his mum, Karen, 46, from Edinburgh, smuggled cannabis-based drugs containing previously banned tetrahydrocannabinol (THC) into Scotland to save her son’s life.
Since he started taking Bedrolite and Bedica – now legally approved for use – he has been seizure-free for 15 months.
But the cost is crippling and the NHS has consistently refused to write a prescription for the medicine which would mean it would be provided free.
Yesterday a firm specialising in CBD products – classified as food supplements in the UK – stepped in with an offer to give all their profits to the little lad’s fund.
GreenActive, headed by Highlander Jo Devall, 33, and his partner Melissa Lopes Correa, has only been trading since August but they are keen to help the youngster.
Jo, who also works as a marine scientist, said: “We are always looking for the opportunity to serve others.
“I saw a Tweet about Murray and it resonated with me and I just wished I could do something to help. Then in occurred to me that I could provide something to this family.
“It fits with who we are as people and the way we live our lives.
“It won’t end in our bankruptcy because we will take out our operating costs but all the profit after that will go to Murray.
“But we won’t run ourselves into the ground and not be around to provide support to everyone else.
“But this fits with our company ethos.”
Jo said he has no idea how much money they will be able to raise for Murray but plan to send the money on a monthly basis from all sales which use the code FORMURRAY at the checkout.
And any customer wanting to help Murray will also get a 10 per cent discount for themselves.
Jo also said no end period had been set and while he had no idea how much the sales would raise he hoped the first payment to the family would be enough to pay for a month’s treatment for Murray.
Last night Karen said: “I first spoke to Jo a few weeks ago and he wanted to know more about Murray’s story.
“What the company are offering to do is absolutely brilliant. I don’t know how much they will be able to give us but anything is great.
“It is just so kind and thoughtful of them to do this for Murray, it really is.
“Hopefully it should take some pressure off us as a family.”
But she said: “It is two years since the law changed and Bedrolite and Bedica became available on the NHS.
“We should have a prescription for this rather than having to rely on our friends, family and the kindness of companies to pay for it.
“People can get Methadone, a heroin substitute, on prescription but not these oils to save my son.”